My hysteroscopy yesterday dealt us another setback and I'm feeling numb.
My husband dropped me off at the clinic 30 minutes early because he had a work commitment he couldn't get out of. I told my sister to come pick me up around 10:30. That's kind of how it is these days. Get a ride from whomever is available, go home, sleep it off. Repeat. Procedures and anesthesia seem to be my new normal. My uterus has been poked around in five times in the last 6 months, three of those with anesthesia.
So having one or two more procedures in the next couple of months won't make much of a difference, right? Yeah, right. Waiting for just an opportunity to conceive has become really hellish.
My doctor removed a little more scar tissue yesterday. She hesitated to call it scar tissue, like maybe it wasn't quite bad enough to fit that criteria, but I'll call it that for lack of a better term. One area in the upper left corner of my uterus just doesn't want to behave.
I need to have another hysteroscopy next month to make sure it healed. My doctor gave me the option of trying to conceive this month, since my follicles are rarin' to go after taking letrozole, but I can't. I told her I'm not in a gambling mood. If scar tissue puts me at risk of miscarriage, why would I risk it? I'm desperate but not reckless.
My procedure next month will need to be performed at the surgery center instead of the clinic. My doctor wants to have access to special surgical scissors in case she sees more scar tissue. If she does remove more scar tissue then, she'll insert a balloon afterward to promote healing. Then there was something about removing more of my septum so that the balloon is more effective, something that didn't make total sense in my Versed/fentanyl haze. She's going to call me today to discuss it further. Oh, yeah, and I would need to have yet another hysteroscopy in April to check out the healing.
In addition to the whole waiting thing, which SUCKS, I'm not psyched to go to the surgery center again. My surgery in December was there and while everyone was super nice, it was quite a process. Lots and lots of instructions and phone calls before the surgery, hard-core anesthesia that required a longer recovery, and an audience of anesthesia people, surgical nurses, and random people off the street who wanted to see my freakish uterus up close and personal. I much prefer feeling less like a circus act at the clinic with just my surgeon and one nurse in attendance.
My husband wants to do another letrozole cycle next month in case everything looks good at uterus imaging session number 252. I was on board at first but am not feeling it anymore. First of all, I have zero hope that my uterus will look stunningly clear. Its track record lately isn't very good. Second, letrozole isn't a walk in the park. Taking it makes me giddy with hope, and I'm just not willing to be let down by an aborted attempt like this month. Not to mention the side effects. They admittedly don't get bad for me until the last day of taking it, but at that point my fatigue becomes crushing and I almost start crying in the produce department because I can't find my husband.
I'm pretty devastated. I knew we might not be able to try this month, but holding onto hope that we could was keeping me going. Two or three or four months isn't a long time in the scheme of things, and when you aren't the one going through it, it's really not. But when it's your life and your body, it feels like it will never end. In the next few months, I'll turn 35, lose my opportunity to have a 2012 baby, and possibly get closer to losing my mind.
I have to say, though, you guys are helping to keep me sane. Your support has been tremendous and is making such a difference in my life. I am enjoying getting to know each of you. Thank you!
I can completely understand your devastation. It sounds like you've had such a rough time of if and I totally get how months can feel like years when you're waiting to try. Keeping everything crossed for you. Best of luck to you and your husband.
ReplyDeleteOh boy I can't imagine 5 procedures in 6 months!! I'm sending healthy (NO SCAR TISSUE) uterus thoughts your way for your next procedure- here's hoping you guys can start trying soon!
ReplyDeleteI'm sorry babe! hang in there!!
ReplyDeleteI really hope that soon you'll be able to conceive the baby that makes it. I can understand your concerns and you wanting to wait until you can be a bit more sure that any other growth won't cause you to lose another baby. I do wish you the best.
ReplyDeleteI completely understand where you're coming from. It's frustrating to get geared up for a cycle only to put on the brakes. Add to that the continual frustration of more bad news and it's a wonder this hasn't driven you insane.
ReplyDeleteHang in there. And if you need to vent, know that there are many here who are more than happy to listen and offer support.
Thanks :)
DeleteFrustration is our middle name, huh? Oh, hun. I am so sorry. I bet you never want to see an IV again!
ReplyDeleteI'm so sorry to hear this :( What a bummer. Uggg. But at least you are being smart and not reckless as you stated!!! I'm so sorry hun. I went in for my baseline yesterday and my monster cyst and blood sausage are back. Yuck. Thinking you you <3
ReplyDeleteOh, no. I'm so sorry to hear that your baseline uncovered more stuff. That's awful.
DeleteOh girl I'm sorry. You're right, it is just a few months but we all understand that 3-4 months can seem like a lifetime. Keep us posted on how this all goes. I hope you get some GOOD news soon!
ReplyDeleteI had one of those surgeries too. It was not a fun experience. I would ask however if instead of them doing a hysterscope to look around, maybe they could just do a SHG (water u/s) in it's place? I know it's not as clear as a camera, but it's a good indicator to see if there is something remaining.
ReplyDeleteHey Alissa--we need to do a hysteroscopy next time because she might have to do some cutting. If she does cut, though, she said I'd have a saline infusion sonogram the next month. I've already had one of each in the past week--ugh!
DeleteSorry Hun, Looking "forward" {NOT} to a few procedures myself and having to wait until 2013 to have a baby too.... But Here is how I look at it, I want to be the best baby making mum ever, right?, and if I don't get "better" unterine-wise then what good am I... we need to get this part of our life full of testing and fixing done so that in may or june when you and I get back on the saddle again we can: get pregnant, STAY pregnant and in 2013... have a little healthy bundle of joy to call our own. Hang in there lady!
ReplyDeleteYou're absolutely right, Ali. We need to get ourselves in as best of shape as we can for growing babies!
DeleteThat just sucks. :( I know what you mean about feeling as though time is running out. I always thought that I'd finish having babies by the time I turned 35. Now I don't even know if I'll be pregnant with my first before I turn 35. Life doesn't go as planned, does it? Take care of yourself, friend.
ReplyDeleteLife certainly throws us some curve balls! Getting old is hard. :(
DeleteI'm so sorry for yet another setback. A few months are an eternity when you want a baby YESTERDAY ALREADY!! Just like that, another month flips by, and then another, and then another, and then good god years have passed by. When you're playing the waiting game, time goes by too quickly and too slowly all at the same time. It just sucks. Hang in there - you can do this!
ReplyDeleteDarn it! This news is so frustrating...I truly admire the strength you have to keep pushing through all of these procedures. It's not just about physical discomfort...it's a very intense emotional discomfort you're also going through. Just imagine all of us little IF bloggers all over the world taking a bit of load off of your shoulders. You're not in this alone.
ReplyDeleteI just tagged you in my Post... thinking about you my dear..... Hang in there, I'm betched too.... Until May
ReplyDeleteI am so sorry you're going through so much. Hope everything works out well soon.
ReplyDelete{visiting from ICLW - Suzy}
Wishing you both luck and strength to make it through these next few months. I too am sick of surgery and would like to never see the inside of a hospital again anytime soon!
ReplyDeleteICLW #32
I'm sorry you have been through so much, in addition to your two losses, which, as I know from personal experience, are no walk in the bloody park :(
ReplyDeleteI wrote a post about how a change in plans can be awful, and how I wish I could deal with setbacks better. One month or two months is no big deal in the giant scheme of things, but when you are raring to go, delays can be AWFUL.
http://aboutplanb.blogspot.com/2012/01/in-which-i-wish-i-was-more-sheldon.html
But you made the right call, when proceeding, best to do so with the best chance possible. Best of luck with everything, I'll be following your story!
Jay ICLW #4
I'm so sorry about having to wait. That was definitley the hardest thing for me after my miscarriage. I just wanted to be pregnant again and if I couldn't be pregnant than I at least wanted the chance. I hope that your next appointment goes well!! Good luck and hang in there!!
ReplyDeleteBest of luck with everything!!!
ReplyDelete{From ICLW} Lavonne @ *Our Wish*
Wow. That is a lot to deal with. I'm so sorry you're having so many troubles and set backs and frustrations. And I know what you mean about 2012. Time just keeps ticking endlessly away yet at the same time I feel frozen, unable to force my body to do what I want it to. Good luck with the next procedure.
ReplyDeleteThat is exactly how it feels. You can't slow down the clock and I feel frozen in time, too. Yes!
DeleteI'm sorry things aren't going the way you want. *Try* not to put yourself on a timeline by having a 2012 baby. I know, easier said than done, but maybe focus on some fun things...and jump back into it, things might be a little more clearer and you will have a more positive attitude.
ReplyDeleteHang in there.
Thinking of you!
ReplyDelete